Prayer Requests and Kind Thoughts
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My name is Steve Wermuth from the 23rd Battalion
Alabama Sharpshooters. My wife Kathleen and I
are trying to raise funds to attend a Medical
Conference this July for our daughter Stephanie's
syndrome. Steffi was born with "Phelan-McDermid
Syndrome", which is caused by a deletion on the
22d Chromosome. There are between 500 and 600
Families World-Wide with this syndrome. We are
the only family in East TN that we know of; there
are several in Middle TN, around McMinnville,
and Jackson.
Many parents, like us, compare it to a combination
of Cerebral Palsy and Autism. Among the symptoms
of PMS, (Yes, PMS) are low muscle tone, seizures,
reflux, severe food allergies. Steffi suffers from all
these. Many children never learn to talk, except for
a few words or phrases. Two of Steffi's favorites are
"Mom", and "NO!" Most of the children do end up
being able to walk with assistance of leg braces,
and years of physical therapy. For further
information on PMS, please visit their website
http://www.facebook.com/l/6AQHVZrD5AQFvKVrzD
JcPvayaNFgUUwiJ_HamzhjRcPPMBA/www.pmsf.or
g . There are also several pages on Facebook about
PMS. Kathleen also has tons of pictures of Steffi, or
"Lil Bit", as I call her on her Facebook page.
The Conference in July is located at the Caribe
Royale Hotel in Orlando. We do have finances to
cover at least half of our expenses. I did express to
Ken my feeling a bit awkward in asking, since we
have been largely unable to take the field in
support of the Division. But we will most gratefully
accept whatever is given -- Prayers and kind
thoughts are always welcomed. Those interested
should send donations to Ken, and he will get them
to us. We are about 45 minutes away from the
"Retirement Cabin" in Wears Valley.
We remain,
Your obedient servants,
Stephen, Kathleen & Stephanie Wermuth
Alabama Sharpshooters. My wife Kathleen and I
are trying to raise funds to attend a Medical
Conference this July for our daughter Stephanie's
syndrome. Steffi was born with "Phelan-McDermid
Syndrome", which is caused by a deletion on the
22d Chromosome. There are between 500 and 600
Families World-Wide with this syndrome. We are
the only family in East TN that we know of; there
are several in Middle TN, around McMinnville,
and Jackson.
Many parents, like us, compare it to a combination
of Cerebral Palsy and Autism. Among the symptoms
of PMS, (Yes, PMS) are low muscle tone, seizures,
reflux, severe food allergies. Steffi suffers from all
these. Many children never learn to talk, except for
a few words or phrases. Two of Steffi's favorites are
"Mom", and "NO!" Most of the children do end up
being able to walk with assistance of leg braces,
and years of physical therapy. For further
information on PMS, please visit their website
http://www.facebook.com/l/6AQHVZrD5AQFvKVrzD
JcPvayaNFgUUwiJ_HamzhjRcPPMBA/www.pmsf.or
g . There are also several pages on Facebook about
PMS. Kathleen also has tons of pictures of Steffi, or
"Lil Bit", as I call her on her Facebook page.
The Conference in July is located at the Caribe
Royale Hotel in Orlando. We do have finances to
cover at least half of our expenses. I did express to
Ken my feeling a bit awkward in asking, since we
have been largely unable to take the field in
support of the Division. But we will most gratefully
accept whatever is given -- Prayers and kind
thoughts are always welcomed. Those interested
should send donations to Ken, and he will get them
to us. We are about 45 minutes away from the
"Retirement Cabin" in Wears Valley.
We remain,
Your obedient servants,
Stephen, Kathleen & Stephanie Wermuth